Hello, and welcome to My Shade of Spectrum.
My name is Shade and I am the owner, creator, ideas behind, ideas for, and everything really about this site! If you have come across this site it is because, like me, you are seeking information about Autism and being Autistic. I have found very little support for adults like myself, and my family have found equally as little information about supporting me. So I set this place up and let me tell you why.
My entire life I have felt different somehow and for 20 years was led to believe all my difficulties stemmed from mental health issues. 18 months ago I spent just over 2 weeks as a patient on a psychiatric ward, and following this I decided to do something about it. I knew I was not suffering mental illness but this was all NHS professionals said was wrong. I had spent 20 years being told doing something different would make it go away, some therapy, more therapy, more therapy, medication, bigger dosage, different medications…..I felt like I tried everything but this magic ‘cure’ never happened so I decided that I had to look into what I felt was the real diagnosis – Autism.
In my heart I knew I needed to look into this. I knew I was Autistic and wanted to prove it. I sought the referral and now have it on paper that I am different from others, but that this difference is not something that needs curing or fixing or that medication will make it go away which is how I had spent 20 years of my life. So many medications for a mental health illness that just did not exist and the lack of time and care put into a full assessment of ME
Following that diagnosis I wanted to explore what this meant for me. I knew I hadn’t changed, I was who I had always been, but I wanted to connect to people like me and find support and ask them things but that support doesn’t exist where I live. Small lie. It does. I could go to it if I stopped working because the support groups are between 10am and 3pm which means I cannot go to them and they also only accept people under 30 which means based on age I couldn’t go anyway!
I decided to not wallow in this. I connected with people in the UK who have discovered my circumstance is not unusual and thought I should do something about this. The name came about because each Autistic person is different from the next, no two definitions will match, hence shades of the same thing; shades of the spectrum.
This site is still being built so please bear with me. I wanted to write this as some people had come across the site and commented on that there was not much on it! I am doing this around my job although I do have a few days off at the moment. If there is something you wish to see, or it raises a question please feel free to get in touch. I am no expert but I will try to find answers if I do not know them.